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The Pneumothorax Community
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4th-Oct-2012 10:42 pm - Spontaneous Pneumothoracies
27 year old Male EX smoker -5’11”- 160lbs at the time of the collapse, I was actually using the bathroom which was the crazy part, had the collapse and toughed it out from 10a.m. until 8pm when I couldn’t take the pain anymore and went to the ER where they had placed a chest tube in the left lung cavity. 3 days later no progression or inflation, 5 days in 2 chest tubes had been replaced and repositioned. Finally the third one wasn’t placed correctly and my right began to collapse which required a chest tube also. Now I was laying in the ICU which two tubes hooked up to suction feeling like I’m in the Matrix or something. Final solution for the left lung was the thoracotomy with pleurodeses thank god it was successful and extremely painful might I Add. The right lung had inflated fully with the help of the chest tube and the surgeon decided it was best not to operate on the right due to the amount of stress that would be on my body. So after a One month stay in that lovely Florida hospital (note the sarcasm). I was released with more scars than Scarface himself. But thankful I’m alive to tell the story now and have been out of the hospital for about 6 months to this day from April 7th, 2012 my admittance day.
1st-Jul-2010 11:11 pm - 1st pneumo last week
 So 21 male here 6' 1"..135lbs, smoker, green and cigs...until my lung collapsed! OMG i couldn't believe it! i thought id thrown my back out or pinched a nerve or something then i wind up with emergency surgery and a tube in my chest for three days. 9 days without smoking and had my last x-ray yesterday doc said it looked great. THEN i wake up this morning and the pain is there but not as severe. hopefully its just a small one that goes away, i dont know how close together these things can happen. it feels a little different though. instead of the sharp pain throughout the chest its like....when i get to the top of the breath/breath as deep as i can.....it feels like my lung is creating a suction off my ribcage. Normal for recovery? or should i head to the ER in the morning if its not gone.
2nd-Dec-2009 05:31 pm - School presentation
This was a Powerpoint file created for a 10-minute presentation for one of my classes in pharmacy school. (Nobody in my class had heard of a pneumothorax before, so yay for awareness!)

Sorry for the lack of audio!

http://www.youtube.com/watch?v=o_YucIRszho

28th-Jun-2007 01:30 pm - newbie!
Michael Corleone
Hi everyone! I'm 20 years old and I had my first pneumothorax sometime last month. I'm a bit of an atypical case: I'm a short, thin female as opposed to a tall, thin male, I had one giant bleb as opposed to a few smaller ones, and I had to have surgery after my very first collapse.

29th-Jan-2007 03:10 am - newbie here
emu
I guess I'll just hop right in here..... typing this from my hospital bed, 24 hours into my second stay and second pneumothorax.

First one happened just around two months ago, while making out of all things! (embarassing!) I can remember saying to my bf how I thought my lung had just collapsed. Fast forward eight hours and I was taking myself to the ER feeling very short of breath, in a lot of pain, and coughing up a lung or so it felt! It was confirmed as a 50% collapse, I was given a pigtail cath chest tube (which I am so thankful for) and admitted for 4 days. Overall it wasn't that bad of an experience, in hindsight of course...compared to this, my second.

But before we get to that...let me mention the small collapse I felt at home one day that reinflated rather quickly but was followed by a month solid of everyday chest pain. Small stabs and aches everyday for the past month!

Then, while at work this past Saturday night I felt it again. You know, the tighness, the pain, the sudden coughing. I informed one of our bartenders (i work at a music venue) and was out the door and on the way to the hospital within 15 minutes. My pneumothorax was once again at 50% and was given the pigtail cath again. GOD I LOVE MY DOCTOR FOR THAT. I keep reading about those big ones they put in your side and how painful they are!! The pigtails hurt, yeah, but I'm guessing it's nowhere near the same.

Anywhoo...(a little fuzzy here as I just got some morphine on top of the darvocet I recieved a bit ago) the doc says he wants to do the camera procedure and possible "glue" my lung back to the wall. My question is this though.... I've read several places that the recovery time and amt of pain from the talc procedure can be a little extreme!!! What are your experiences with it???

Thanks for listening and the advice guys, it's good to know we're not alone here!!! I'm only on my second and it's already so frustrating!!!
12th-Jan-2007 11:49 am - Surgery in a few days
amelie eats
Well, I got a call the other day and I am scheduled for surgery on WEDNESDAY (the 17th). Nice notice, eh?
I had to get all my work shifts covered and figure out everything so fast!

I am pretty nervous. I think this one is....thoracotomy? I swear my surgeon said some word that started with a B or something but it was so long ago I can't remember. So basically, I will find out the details for sure on Monday when I go in for Pre-Op.

I wasn't expected such short notice...I've been on the wait-list for almost a year haha.

Anyway, a week in the hospital, couple months recovery. Hopefully I can get EI sick pay! Luckily I just paid off my card so I mostly have to worry about my student loan payments.

I am a bit nervous. I bought myself a cheap laptop to use while in the hospital since all the other times I had my school laptop. Sadly, I don't have blue cross coverage anymore so I will most likely have to stay in a ward. Not that it is a HUGE deal, but last time I had to stay in a ward temporarily, there were 4 old men and I saw waaaaaaaaaay too much of them haha. Of course, in my semi-private I saw a bit too much of my roommate as well, but at least you have some privacy. I asked how much the semi-private and private rooms cost and it's $130/night for semi and $160/night for private. How crazy is that? I could stay at a fancy hotel in the city for that much :P Oh well!

I hope it all goes well..

Thanks for all the support over the years :P

-Heather
28th-Jun-2006 11:21 am - Oh wow!
Dani
I had no idea there was a community here for PT people!

I suppose it's intro/storytime, then! :)

I'm Becky, 22 and I've been dealing with this for four years.

Cut for lengthCollapse )

Does anyone have the urge to whack people over the head who blather on about "oh, but you're so tall and skinny! You're perfect!"? [-insert eyerolling on my part-]

I'm glad to be here. :3
27th-May-2006 02:04 am - CTV
amelie eats
One of our channels, CTV has a program "Live at 5"

Anyway, a few weeks ago they had a segment on collapsed lungs in thin, tall women. Thought that was pretty cool. Too bad I couldn't have been on it lol.


I know I posted before saying I had to see my surgeon to find out if I get the "big" surgery...and I do have to get it. Just waiting for the date.

He said they will slice my back open, remove the abnormal area if they can see it, and then remove the lining of my lung so my lung sticks to my ribs. A week in the hospital, a month recovery.

Fun stuff I tell ya :| ughhh
20th-Apr-2006 02:51 pm - Update
amelie eats
Well, I got my tube out yesterday. Fastest recovery of my lung EVER, and it was the worst collaspe. Strange!

Feeling a lot better. The pain is minimal now that the tube is out and I haven't taken oxycodone since yesterday morning (in preparation of getting the tube out), and then one anti-inflammatory later on...and some tylenol at bedtime. I have a horrendous headache. Maybe from going from 2 oxycodone every 5 hrs pus 1 anti-inflammatory 4 times a day to taking none...ughhhh. Well, plus everything else.

I'm still taking it easy and left a message with my surgeon so I can see what he thinks. I sort of didn't want to call him since he said the next time I get the "big surgery" :(

I get to write one of my exams Monday and the other one is still up in the air :/ But I'm fairly confident I will be able to graduate May 14th as planned :) My other prof let me email my take home exam and book report instead of climbing the stairs to his office so that was nice!

Now I will continue to be paranoid of every little pain as I was before... :( I think that is the worst part.

Plus it sucks...everyone is out partying and having fun for being done exams and graduating...and I just sit here like a blob eating chocolate and icecream, watching re-runs of shows on my computer :/ I feel robbed of my graduating experience!!! Last year my friend was graduating and my lung collapsed so I missed getting to see her before she moved back (except for in the hospital a bit)...and this also happened my last day of highschool so I missed that too...

Just not fair sometimes.

Does anyone else just find it so frustrating??? I mean I know it's stupid but I've spent so much time crying when my lung collapses and not just because the pain but just because it's so unfair.......I wonder what I did to deserve this.

Oh my.

-Heather
17th-Apr-2006 07:37 pm - Another pneumo
amelie eats
Well, it's exam time for me...I graduate from University next month. I had been studying hard all day and decided to give myself a 2 hr break...1 hr to just relax and go online...the other to watch Desperate Housewives :P

I was feeling pretty good, then went to watch my show...and BAM...pain in my back....got worse and worse. Called my mom and started to cry because it got so bad. I decided to call a taxi and then that changed to calling 911 because the pain was so unbearable I was scared of the longer drive in the taxi.

Ambulance arrived shortly after and I was put on oxygen/iv and taken to the hospital....got my xrays and sure enough, it was another pneumothorax! same lung (left side).

Finally got drugged up and my side frozen for another tube. This one was different from my others....it's not attached to suction...just sorta hanging there

Here are some pics:

Tube 1
Tube 2
Tube 3...best view I think

It is a TINY tube...wasn't used to that...anyway, they took xrays after and my lung was a lot better. Then I started having worse pains than before. The doctor thinks it was from my lung re-inflating and the tube rubbing against it...because it was more of a burning in the front area (similar to after my first surgery).

After being given tons of meds (I was bawling my eyes out...how embarassing! lol), I started to feel better. My boyfriend arrived from an hour away (at almost 2am) to stay with me, and then they let me go home!!!!! I was sort of confused. So here I am with this tube in me...in tons of pain! and heart monitor stickies all over me lol

The pain has been pretty bad...The nurse gave me percocet for overnight (a box of 4 tablets) and then a prescription for percocet and an anti-inflammatory...

I finally was able to go and get the prescriptions filled...pretty painful, and have barely been able to sit up or move for long all day :(

I'm pretty doped up now and just had a bath and washed my hair to try and feel better...but man, this is worse pain than any of my others, and I believe it's mostly due to the tube (although the pain from the initally collaspe was very very very painful as well!)

So, has anyone had these kinds of tubes before???? And been able to go home with it in??? They were going to keep me but it was very busy there and they thought I was be okay at home (they made sure I was okay pain-wise though)...and luckily I was able to get my boyfriend to come up so I wouldn't be home alone. I was supposed to go back today for an xray but since my last one (after the massive pain attack) was excellent, I can wait until tomorrow.

Another thing, this is the 3rd time my lung has collasped at exam time......has this happened to anyone else??? Last year I missed all of my end of year exams and I will miss them again this year....Bad thing is I'm supposed to graduate May 14th and I don't know if I can write my exams in time (one prof said she had to make a whole new exam for me and wouldnt be ready until the end of May but I'm trying to change that)...so it's very stressful!
It also collapsed my last day of high school in 2002...and then a few other random times..

Oh my...I guess that's all I wanted to say. Hopefully this makes sense....I'm reaaaaaaaaaally doped up.
It's so confusing and irritating...this always happens at the worst times :(

Hope everyone had a great easter!!! :P

-Heather

ps-> in case it wasn't clear (i read this over and wasn't sure if I made sense), it collapsed LAST NIGHT around 10:05pm, I got home around 3am this morning...Now almost 8pm the next night :P
14th-Apr-2006 10:40 am - Short of breath or long winded?
youngme
Prompted by raventhon's post, I thought I'd post my own introduction/story of my experiences with spontaneous pneumothorax. I've never discussed it, more than a few words here and there, with others who've had the same experience. After 16 years I guess now's as good a time as any.


Sixteen years worth of lung troubles? You bet it's cut.Collapse )
23rd-Mar-2006 01:54 pm - Links
General:
Pneumothorax.org - Pneumothorax News, Information and Forums
Pneumothorax.org - Survey #1
Pneumothorax.org - Make a Difference: Support the Pneumothorax Community
Pneumothorax.org - Links and Resources
Blebdisease.com - The Spontaneous Pneumothorax Patient Network (TSPPN) - Information and forums

Articles:
MedlinePlus - Pneumothorax
eMedicine - Pneumothorax, Tension and Traumatic
Wikipedia - Pneumothorax
Blebdisease.com (TSPPN) - Articles, text, and events

LiveJournal:
pneumothoraxes - Public community
blebdisease - Public feed from TSPPN's articles and events

Visit TSPPN


If there are others that you know of, please let me know.
11th-Feb-2006 11:10 pm - skin discoloration?
Hey guys,

I was just wondering if any of you noticed a little darkening of the skin in the area of your lung that you had surgery on... I've had the minimally invasive scope surgery on my right lung two years ago and just recently had the bigger surgery on the right lung and a scope surgery on my left a couple months later but I just noticed that the skin around my right lung is a little darker than the rest of my skin.. I don't really want to go back to the doctors as life if just getting back to normal, so hopefully one of you guys had the same results? Hopefully it's just some after-surgery bruising :)
17th-Jan-2006 12:50 am - funny f*ups
Hey guys, just got out of the hospital from my first surgery on my left lung, third surgery in all including the two on my right. I guess smoking wasn't good for both of them haha. Anyways, just wanted to tell you all a couple stories of how incompetent the nurses here in Hawaii are. These stories all take place as I was about to get the chest tube pulled out.

1) As I was lying on my side, the doctor was explaining how I had to take a deep breath and hold it, then the nurse would pull the tube out. He clearly stated that we would do one practice run, then the real one. He counted to three, and I inhaled and held it. The nurse pulled the tube out halfway and the doctor yelled, "No no no this is just practice!" and she shoved it back into me. Luckily, we did the real run and there were no complications.

2) The resident doctor was in charge this time. She told me to inhale and the nurse would pull the tube, and I did, but she didn't tell me to hold my breath, so air leaked in and my lung collapsed again. Bummer.

3) The surgeon got upset and was going to pull the tube out himself after my lung re-expanded. He was all ready and explaining the procedure when my chest tube got stuck on the corner of the bed as he was raising it and my water-seal broke as the thora-seal container fell over. Air rushed into my chest cavity and my lung collapsed again.

The last two stories were from my last stay in the hospital - almost two weeks just because of these screw ups. Oh well, I'm back home now, and I dropped my courses this semester so I'm gonna be a bum until August when school starts again. Hope you all enjoyed those bloopers and hope they don't happen to you!
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